Do Not Drink the Sand. 11-8-13

Drowning duck in blue water

It was the end. The final deadline in a marathon of deadlines, that told me, all Sandy Survivors, “You do not belong. This is not your home.” It was the final confirmation of America’s lack of preparedness to deal with disaster and protect her people in time of crisis. Today was terrifying, because it is me they are evicting this time: but it is all of us. I was being thrown out of the hotel, but, in a few months survivors are to be systematically thrown out of DHAP/HUD temporary housing apartments, the second stage of their housing marathon.

The government is not prepared for Recovery. Survivors are pleading to deaf ears, at televised rallies and to legislators, for recognition of unrealistic deadlines.

I had witnessed the others, one by one, dragged from hotel rooms by paid bullies representing broken systems: people hanging on to hotel room doorways with bleeding fingertips. And I contemplated what I would do, when they came to get me.

It was a raw cold day. Once again, I/we were abandoned by every entity of the Disaster System supposed to help survivors return home. I spent my first full day officially without temporary housing, without one phone call from Case Workers, Agencies, Programs, or Charities, inquiring if I was o.k. It was jarring to realize how bankrupt disaster systems ignore, deny and pass over you, and that one can fall from hero to derelict, not by your own actions, but the actions of inadequate, broken systems assigned to help in crisis, that have failed. I floated in a cold hissing mist that numbed my senses and isolated me, the whole long day.

The final deadline was issued via U.S. Mail by the Health and Welfare Council of Long Island on a cold November 8, 2013. The letter was a very carefully-worded legal document, obviously designed to protect the Unmet Needs Roundtable from culpability if their action caused me bodily harm. In a way, it was a relief, to be cut off from their judgmental, unsympathetic consideration: help clearly communicated to me only offered to procure my potential NY Rising Grant.

They picked up my tenure at the hotel on September 15, 2013 when FEMA ended the Temporary Hotel/Housing Program, and FEMA issued a non-answer to my 504 Appeal for Reasonable Accommodation on the basis of my Disability. FEMA’s TSA program had been a series of bullying and threats of eviction every two weeks since Sandy hit. At termination of the TSA Program, FEMA dismissed me with a barrage of internal machinations and misrepresentations, clearly stating they do not validate or respond to Appeals. DHAP/HUD was assigned to provide the next stage of appropriate housing for 12-18 months for all Survivors.

The problem for me has always been that I am disabled, with severe medical and physical consequences, that were completely accommodated in the adapted environment of my home pre-Sandy. It has been hideously difficult and painful for me to be without that environment. I cannot function in a generic space, a high-rise apartment, a basement, a house up to 50 miles away from my medical care, options offered by uninformed, unconcerned case workers. I requested being permitted to remain in the hotel, where I am functioning.

DHAP/HUD absolutely refused to keep me at the hotel, and refused to consider every single viable option I suggested that could accommodate my needs. Still, DHAP threatened since June, that if I did not sign their paperwork (which states that I would then be cut off from returning to FEMA programs) “today, the last possible day” that they would list me as “non-compliant” and close the case. The Red Cross, NY Rising, all the “charities” that got the Robin Hood/Concert donations for the Survivors, refused to consider temporary housing for the lady in a wheelchair waiting for a Buy-Out of her now-toxic house. The world has become a caricature: compassionless officials with pearly white eyes that can not process images.

FEMA/DHAP insisted, “Drink the sand. Drink the sand and we will help you.”.

I said, “I cannot drink the sand. It will kill me.”

They called it cooperation, compliance, but it was sand. I choked down the putrid grit offered by hypocritical bullies, and puked up the bowels of my devastated home. I gasped, tears burning my abraded face, and fell into the muck.

I thought of all the people throughout history eliminated by barbarians because they were weak or disabled: in concentration camps, slavery, war-time death marches, and the man on the hijacked Mediterranean cruise ship thrown overboard in his wheelchair by terrorists..

I said to FEMA, “I did what you asked. Help me to go home.”

They replied, “Go to DHAP/HUD. They will build you a castle.”

I said, “You promised.”

FEMA responded, “Promises are words. We have lots of words. Do you want some more?”

I ran against the fierce, cold wind, sobbing, but I was sinking fast into the shifting sand. I was smothering.

One year post Sandy I hold these truths to be self-evident: that, no men are equal. The weak and infirm hold up the line, are disrespected, left behind, trampled. He who is different must endeavor to be the same and keep up, or be dismissed and exterminated by broken, out-dated systems. Agencies and Programs for helping, are businesses and figureheads, not facilitators. There is no help for those who fall down. If your life was a pillar of good works, no one cares. Individuals do not exist in systems.

Every person could fall down from a freak of nature, through no fault of his own and be dismissed, forgotten, smother in the shifting sands of broken systems. You are on your own. If you give your power away to barbarians, you lose your ability to take care of yourself, to revive. Do not drink the sand. Sand kills people!

Beware of Do-Gooders with Axes. 8-12-13

Giving dumbbell to sinking man instead of help. Making worse con

Loss is a hierarchy of values, unique to oneself, impossible to comprehend from the outside. Loss is layers of priority, woven intricately across your life, a tapestry of history, experiences, memories, possessions, ownership, and environment, withdrawn. It is exhaustion of the tiny treasures in your life, tangible and intangible, that soothe you, nurture you, buffer, energize and propel you. The greatest losses are intangible, impossible to grasp without heartstrings.

The survivors of the SuperStorm understand the hierarchy of loss. Loss for them focuses on home, their history hemorrhaging across a painting in progress by an artist concentrating on a date of completion, not the hues: loss upon loss wiped away as a mistake on the canvas, an intrusion in the gestalt, smeared by a cold hand without pulse.

I had a home. It was beautiful to me: pretty, muted pastels, soft fabrics, comfy pillows, cozy workspaces, solid wood furniture, functional, all that I needed. My home was memories: my children scribbling everyday adventures across the walls, carving their dreams into Mimosa they straddled, imaginations soaring, unfettered; rolling in fragrant grasses with abandon, looming green foliage affording security: inspiring me, delighting me, as they grew strong and tall, like the trees in my sweet garden. It was all that I wanted: all that I needed.

The rocks in my garden were collected from the world: fondled, contemplated, transported to this fertile land, their history intact, lovingly placed with deliberation and intention, substantial and validated. My garden reeked of mountains, forests, meadows, beaches, streams, waterfalls, oceans, and Indian preserves, with igneous, sedimentary, metamorphic. Smooth Florida ocean rocks, Nova Scotia conglomerates, river rocks from Maine rested beside Mermaid’s toenails from Noyack, vibrant sunset shells from Sanibel, slipper shells, spotted clams, olives, angel wings, paper figs, murex, whelk, curls, and conchs. I picked each up because it was special, like the people in my secret garden.

I nurtured a sweet garden so many years ago, to shelter my children from the busy street, to give them unspoiled acreage to own: before baseball and two-wheel bicycle rides to Jones Beach expanded their world into tomorrow. Those were years of innocence, when neighborhood children flocked to our verdant sanctuary, for a summer’s day of riding toys, sliding water fun and hours of good climbing trees, imagining and inventing, rehearsing tomorrow, dripping ice pops into the cool dark earth, dirty feet running across blankets of soft grass. Those summer days of noisy children with dirty hands in my garden, needing me, wanting beyond any place to be here with my children and their toys, lived on each morning, in songbirds summoning me to tall hedges with deep strong roots, and soaring climbing trees. Memory whispers timeless messages across the heart. How simple, yesterday.

Then came years when bikes turned into cars. Heavy traffic on the street triggered adapting the yard for greater functionality. A street, that had once been dead-end host of neighborhood softball games, now wrapped around the new Cedar Creek Park and down to Seaford Harbor Elementary School, providing access to marinas and taverns. Cars were being hit in the street regularly by drunks. I placed white rocks where the grass used to be and two toyotas slept peacefully through college.

In those days, Cedar Creek Park was a bone the County threw at homeowners who protested the County’s repurposing of the marshland stretching south from our homes all the way to the Great South Bay: a playground for fishing, bird-watching, romping and exploring, ecosystems wiped out, mutilated, usurped by local government, to create a bedroom for sewage tanks and a chemical plant to spew the oppressive stench of chemical sewage into the salty air at 2 a,m, each night, as infants sleep in their cribs.

On October 29, 2012, SuperStorm Sandy engulfed our neighborhood with raging floodwaters, spewing sewage that tore our lives apart. My house gulped down the putrid slime and puked up everything I owned: my secret garden stood resilient above the onslaught, quiet sentinel. And as spring breezes ruffled lush lacy foliage, I sat each day in my fragrant green sanctuary and believed in restoration and nesting.

FEMA, the government agency for Hurricane Sandy survivor’s assistance, let us all down: providing outlandishly low assistance grants, that made timely return home impossible. FEMA prefaced the assistance with, “You can do it with free help.” In reality, during such an extensive event, free help, any help, was virtually non-existent. The survivors were on their own: destitute, living in substandard, make-shift quarters, due to governmental failure. The Hurricane Sandy Recovery effort is a National Tragedy: America’s shame!

Temporary Housing was doled out by FEMA. People dropped out of Temporary FEMA Housing every day, not to go to HUD apartments or permanent housing, but to substandard private accommodations anywhere, just to get away from the bullying and constant threats of being thrown out by FEMA agents at their door.

So, under threat again of being thrown out of the Hotel by FEMA in three weeks, I accepted an eleventh-hour offer of free help from an international church group seeking a house to restore. They had a house to restore on Monday, but it fell through. Consequently, they had 10 volunteers coming from Alabama on Sunday. I was called on Friday by the Director, who outlined what they would do in my house: check the roof leak, and possibly patch it, empty insulation and toys from the attic, insulate the walls, and sheetrock. I asked if that was all. He said yes.

I trusted this group because they had gutted my house. They had been kind, thoughtful people, who seemed competent enough. They never overstepped their authority, in their past interactions with my house.

I pulled up to the curb, prepared to ease my accessible van between formidable hedges enclosing my ravaged, gutted home, as I did each day since the malevolent event. I was comforted by this precious remnant of my life left looming, strong, surviving, like me, the terrible storm: my yard, filled with shadows of squealing children from yesteryear. I spent hours here every day, nurtured by memories.

My van hesitated, then stopped. Oddly, I pulled up to the wrong house, one that was in the process of being bulldozed, it seemed. My internal navigation had failed. Clearly, the hedges I passed through each day to a restoration project limping along without funding, were not here.

No, my house was standing green and solid in front of me, clearly visible: naked, exposed, vulnerable, on a totally bald lot, sterilized, automobiles speeding past. My yard was obliterated. My garden, was mutilated, demolished, gone! The ground was still steaming. My eyes clouded over and bled profusely a lifetime lost. Loss upon loss pummeled me and I was overcome. Hope threw a lance through my heart and I bled out in the street. I was all gone. There was nothing left of me. Nothing left!

A mob of burly workers, were hacking, chopping, slicing, ripping up roots that were pulling back with 60 years of brute strength and cherished history, unwilling to yield the land of their birth, struggling against insanity. Strangers raked wet dirt over my white pebbles, standing on my rock garden, loading six-foot-long pivots into belching yellow dumpsters, to transport what was left of my life to some stinking landfill, my yard to wither in the hot summer sun, and die, unattended, unloved, the last vestiges of an unjust, uncaring world gone berserk.

I was empty. My world was only devastation and loss. Gasping green vines hung limp from the dumpster screaming my name. My heart shrieked so loud my head exploded and membranes rained down on the fragrant dirt, and soaked into my land. I could not breathe. It was armageddon. Goodness was gone.

A big, rough man with a pleasant face walked toward my car. A grey-haired woman stood on my oozing land, pointing, amid swinging blades: men with axes trashing my land without permission. Strong men struggled with massive roots that would not relinquish their right to survive and howled for me to save them. The violence smothered a field of white pebbles and smooth pink river rocks. They had obliterated every piece of foliage, every living thing, from the street to the windows: privet hedges, Roses of Sharon, Wisteria, Forsythia, mom’s American Beauty rose bushes, pachysandra, and oak trees my sons planted. The ground looked like it was put through a sifter. Insensitivity swallowed my past, sucking songbirds, purple violets and lily of the valley, sweet blooming Privet, through the jagged, closing chasm.

The man walked over and leaned against my van, resting his sweating arm across my mirror, “Wendy?” he said. I wanted to throw his arm off my property.

“What did you do?” I whispered, breathless. I was shocked, devastated, appalled. I did not understand. I felt faint, enraged, hopeless, terrified. “What did you do to my yard?”

He turned away from me, toward my raped land, and declared with callous disregard, “Looks good, doesn’t it!”

I wanted to tear his head off and smash it to the pavement, at his arrogance. His lack of feeling confirmed he was not human.

“Why did you do that!” I said. “You had no right!” I could find no words. It was too horrible. “This is my land.”

“It had to be done.” he said. “It looks better.”

“Better than what? You had no right. This is my property.” I insisted. Everything was spinning. I could not see, for the tears.

He stood there with his back to me admiring his delinquency.

“Is Grace here?” I mumbled.. She was an administrator: he was the foreman.

“She’s over there,” he pointed. He called to her, like nothing was wrong. She walked toward my van. I was slipping away.

“Hi.” she said cheerfully. She was an arrogant woman with a perennial smirk. I wanted to lunge from my van and strangle her, as she did my garden. I was face to face with the Devil.

“What did you do to my yard? “. I said. “How could you do that?”

“Your neighbors like it.” she smiled.

“You talked to my neighbors, but you didn’t call me?” I said. “Why did you do this? This is my property!”

“In this Program,” she said, “we must make the house better. This is better.”

“No! No, this is not better.” I said. “You trim a hedge, you don’t demolish a yard. You had no permission to touch my yard! This is my property! You had no right!”

The two stood against my van, ignoring me, prattling, “It looks good. This is the least of your worries. You should be grateful. People have a lot more to worry about than something like this. You have a lot more to worry about than this.” They were arrogant ego-maniacs, trampling on property rights and choice, in the name of charity. I was revolted by their smug self-righteousness.

There was nothing I could do: it was all gone! My ability to function, in a wheelchair, living alone, on a busy street, was gone! It was no longer safe, secure, or private. The damage was irreversible. As a person with multiple melanomas, there was no longer shelter from the sun. The firm rocky surface for my wheelchair, exists no longer. They didn’t get it!!!

I guess the church trashed my yard because they had 10 volunteers from Alabama with nothing to do. The building materials were not delivered until 3:15 p.m., long after my yard was demolished by men with axes. They obliterated my present and my past, to provide busy work.

I lost my home to a terrifying natural event. I lost my environment to terrifying control freaks feigning charity. Beware of do-gooders with axes! They will tear your heart out!

Shadow of FEMA. 7-2-13

FEMA opens disaster recovery center in devastated area

There is value in losing everything, in being destitute in a world of plenty, in a world of things. When you have lost everything you struggled and sacrificed for all of your life, rather than a void to be filled, there is a crystalline strength in you to be accessed. You see clearly. You feel, untethered. You know truth, You fear nothing. Possibility is unlimited.

Nothing worse can happen to me. I have nothing left to lose. Nobody can hurt me more. That is very liberating, and sad. I tell no lies.

The agency of the United States Department of Homeland Security, called FEMA, is out-dated, and out of control. It needs to be investigated and held accountable for its actions and mistakes: re-thought, re-structured, re-designed. FEMA has become a pale shadow of its original intent, which was to coordinate response to a U.S. disaster that overwhelms local and state resources.

Present day FEMA runs rampant over people and circumstances, wrecking havoc on good and honest men, making a disastrous event into a human relations nightmare, an avenue to destitution and bankruptcy. FEMA treats people with callous disrespect, and gives them outrageous token assistance that is much more a hindrance to recovery than a help. People walk away from their homes, because they are being offered nothing: no help, assistance, options, no hope. People walk away from FEMA disrespected and bleeding. I watch broken peers walk into the surf, shoved out of shelters, with no place left to lie down, and I am diminished.

The problem is not the resources of FEMA or its limitations, it is the attitude, training, process, procedure and accepted outcomes. FEMA gives people only the ability to walk away from their homes, or paste together disorder and destruction, in the name of restoration: to become an unlivable sinkhole when FEMA is safely removed, working on its next disaster. FEMA is hindrance: negative help, professional bullies.

This is the country I love. I wish I could say something more positive about its effort to manage disastrous events. But, the only productive way to interact with FEMA is to point out their glaring failures, and hope that someone will respond with critical analysis and action. It is time to stop limping off alone, licking our wounds. We must stand up together and acknowledge how much damage FEMA does, for change to happen. There is momentum in truth, to action.

I am not afraid of FEMA. I lost everything. Then, FEMA destroyed all of the intangibles I had left. I join a crowd of survivors who have been hurt, not helped by FEMA. Perhaps we are irreparably hurt. Perhaps we can recover, despite FEMA.